Thalassemia is a rare condition, and for that reason, there are very few opportunities for communication and interaction among patients, which intensifies doubts, fears, isolation and prejudice. Thinking about the positive impact of the previous editions, in the context of socialization and mainly, the value of exchanging experiences and ideas, Abrasta will hold the 6th Meeting with participants from different countries in an online format.

The participants will have an opportunity to meet other people with the same condition and share their individual experiences living with thalassemia. They will also be invited to speak about relationships, work, challenges and achievements. This virtual meeting will foster a sense of belonging, support and inspiration.

The event will take place on Saturday, May 16, lasting four hours, with simultaneous translation available in three languages (Portuguese, English, and Spanish). After the welcome session, multidisciplinary experts will kick off a discussion on holistic well-being, focusing on physical and emotional health, as well as self-care.

Next, we will have a roundtable discussion – now with a new feature! We have unified the rooms that were previously divided by age groups in order to address the thalassemia patient journey across different stages of life, with the opening led by ABRASTA’s Patient Committee. To conclude on a high note, we will host a masterclass on new treatments and key pillars of care.