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2º INTERNATIONAL DIGITAL MEETING FOR PEOPLE WITH THALASSEMIA

May, 14 | 2022
twelve o’clock – 12PM – 4PM | New York

  • Brasil – 13:00 hrs as 17:00 hrs
  • London – 5PM – 9PM
  • Ottawa – twelve o’clock – 4PM
  • Buenos Aires – 1PM – 5PM
  • India (standard time) – 9PM – 1AM
  • Pakistan – 9PM – 1AM
  • Bangaladesh – 10PM – 2AM
  • Greece – 7PM – 11PM
  • Trindade e Tobago – twelve o’clock – 4PM
  • Spain – 6PM -10PM
  • Malásia – midnight – 4AM
  • México – 11AM – 3PM

Thalassemia is a rare condition, and for that reason, there are very few opportunities for communication and interaction between patients, which intensifies doubts, fears, isolation and prejudice. With the pandemic, these feelings can certainly be enhanced.

Thinking about the positive impact of the 1st edition, in the context of socialization and, mainly, the value of exchanging experiences and ideas, Abrasta, in partnership with Thalassemia International Federation, will hold the 2nd virtual meeting among thalassemia patients from different countries.

The participants will have an opportunity to meet other people with the same condition and share their individual experiences of living with thalassemia. They will also be invited to speak about relationships, work, challenges and achievements. This virtual meeting will facilitate the possibility of coming together as a group and it will also provide an opportunity to form new friendships.
The event will run for 4 hours on May 14 and will offer simultaneous translation to English, Spanish and Portuguese.

Room 1 | Parents
Family
Nutrition
Fear of losing a child
Challenges related to blood transfusion and treatment adherence
Therapeutic advances and innovations
Children’s independence
Room 2 | 14 to 26 years age group
Job market
Transition to adulthood
Mental health
Sexuality, fertility and relationships
Adherence to treatment
Room 3 | +27 years age group
Comprehensive care
Financial impact and burden
Secondary diseases
Life expectancy and strategies to deal with aging
Patient rights
Education and resources: be an expert in your own care
Job market

Talent show for people with thalassemia

During the intermissions we will be featuring videos submitted by showcasing your talent. Whether you can sign, dance, mime, play an instrument etc we want to hear from you! Send us a video, remember it should not be more than 3 minutes maximum.

Show us your talent! Singup and click on yes when we ask about your interest in participating.

Important! The videos will be pre-selected by the number of votes, which will be the interactions in each video on Abrasta’s Youtube channel. 

Organization

Join us! It is free to sign up

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